Tag: Charlotte Figi

Documentary ‘CBD Nation’ Follows a Family’s Journey to Save Their Child

“I would do anything for my child (or children),” is something that parents understandably say and feel. While not a parent myself, I often imagine that the immense pressure of protecting a life that you brought into this world, and that you love more than yourself, has to be overwhelming at times. I think that there must be some superhero parent gene that kicks in because every time that I’ve ever watched a family member’s or friend’s, kids for just a couple of hours, has turned me into a nervous, exhausted wreck.

Unfortunately, too many parents have been forced with the traumatizing decision of attempting to save their children’s lives, but having to break the law to do so. The plight of Charlotte Figi, may she rest in peace, brought this issue to mainstream audiences after Dr. Sanjay Gupta profiled Charlotte as he documented the science and his own journey from prohibitionist to medical cannabis supporter on CNN. Now, as the Daily Beast reports, more stories like Charlotte’s are being told:

As more and more states (and countries) legalize marijuana for both medicinal and recreational purposes, so too has the conversation over CBD grown exponentially. CBD Nation tackles the potential therapeutic applications of marijuana’s non-high-producing compound from numerous angles, and while its inquiry is far from comprehensive—to its detriment—it nonetheless adds to a growing chorus of voices contending that CBD is a safe, effective and possibly revolutionary treatment for a variety of ailments.

As with last year’s Waldo on Weed, Tommy Avallone’s portrait of a Pennsylvania couple that risked imprisonment by procuring and giving CBD to their eye cancer-stricken infant son, writer/director David Jakubovic’s documentary (on Amazon and VOD) is most compelling when it focuses on real-life examples of the magical benefits provided by the cannabidiol compound, which unlike THC, does not leave one stoned. Best of that bunch is the tale of Rylie Maedler, a young Delaware native whose life was threatened by a fierce bone tumor that—as horrifying facial scans illustrate—was literally eating away at her skull, causing her cheeks to slouch and her teeth to fall out. Faced with a fatal prognosis, Rylie’s mother Janie began giving Rylie CBD, and the effects were nothing short of astounding, eliminating the remainder of her post-surgery tumor, restoring her facial bone structure, and improving her general health and well-being.

If you have Amazon or can purchase it on demand, be sure to check out CBD Nation and spread the word. Hopefully, we can continue to convince legislators and policymakers to implement policies that will provide medical cannabis to all they need it, whether it contains THC or not. With virtually everyone supporting medical cannabis, too many folks feel like the battle has already been won, but too many people are going without a medicine that can benefit their lives, or those of their loved ones. Even in fully legal states, medical cannabis can be too expensive. Step by step, we must continue to share the truth about cannabis, until every patient has the medicine that they need.

Rest in Peace Charlotte Figi, Your Strength Saved Lives and Changed the World

The coronavirus pandemic has disrupted all of our lives, causing immense pain and grief across our nation and globe. One thing that I have learned during this crisis is to better appreciate that there are people who live their entire lives in a constant state of emergency and those people need help, support, and hope.

I imagine that there can be no greater sense of despair than watching your child suffer. Unfortunately, this is an all-too common part of life for too many people. Hearts around the world were changed when they learned about the suffering of Charlotte Figi and her family because of Dravet syndrome. Cannabis extracts improved her life and the world was changed for the better. Unfortunately, due to COVID-19, Charlotte passed away yesterday at just 13 years of age. May she rest in peace and power, forever. My heart goes out to her parents Matt and Paige, her family, and everyone mourning the loss of a special angel warrior.

Most people first learned about Charlotte’s plight from Dr. Sanjay Gupta’s special “Weed” and that mainstream attention changed the debate around medical cannabis and cannabis in general. Here’s an excerpt from the CNN piece “Marijuana stops child’s severe seizures“:

Today, Charlotte, 6, is thriving. Her seizures only happen two to three times per month, almost solely in her sleep. Not only is she walking, she can ride her bicycle. She feeds herself and is talking more and more each day.
“I literally see Charlotte’s brain making connections that haven’t been made in years,” Matt said. “My thought now is, why were we the ones that had to go out and find this cure? This natural cure? How come a doctor didn’t know about this? How come they didn’t make me aware of this?”
The marijuana strain Charlotte and now 41 other patients use to ease painful symptoms of diseases such as epilepsy and cancer has been named after the little girl who is getting her life back one day at a time.
It’s called Charlotte’s Web.

In this life, we can only hope to impact as many lives that Charlotte did. The Charlotte’s Web strain was named after her and countless people will have their lives saved and improved thanks to her strength. While my heart aches for her family, I’m glad that we live in a world where brave people like Charlotte and her family stand up and change the world for the better.