The coronavirus pandemic has disrupted all of our lives, causing immense pain and grief across our nation and globe. One thing that I have learned during this crisis is to better appreciate that there are people who live their entire lives in a constant state of emergency and those people need help, support, and hope.
I imagine that there can be no greater sense of despair than watching your child suffer. Unfortunately, this is an all-too common part of life for too many people. Hearts around the world were changed when they learned about the suffering of Charlotte Figi and her family because of Dravet syndrome. Cannabis extracts improved her life and the world was changed for the better. Unfortunately, due to COVID-19, Charlotte passed away yesterday at just 13 years of age. May she rest in peace and power, forever. My heart goes out to her parents Matt and Paige, her family, and everyone mourning the loss of a special angel warrior.
Most people first learned about Charlotte’s plight from Dr. Sanjay Gupta’s special “Weed” and that mainstream attention changed the debate around medical cannabis and cannabis in general. Here’s an excerpt from the CNN piece “Marijuana stops child’s severe seizures“:
Today, Charlotte, 6, is thriving. Her seizures only happen two to three times per month, almost solely in her sleep. Not only is she walking, she can ride her bicycle. She feeds herself and is talking more and more each day.“I literally see Charlotte’s brain making connections that haven’t been made in years,” Matt said. “My thought now is, why were we the ones that had to go out and find this cure? This natural cure? How come a doctor didn’t know about this? How come they didn’t make me aware of this?”The marijuana strain Charlotte and now 41 other patients use to ease painful symptoms of diseases such as epilepsy and cancer has been named after the little girl who is getting her life back one day at a time.It’s called Charlotte’s Web.
In this life, we can only hope to impact as many lives that Charlotte did. The Charlotte’s Web strain was named after her and countless people will have their lives saved and improved thanks to her strength. While my heart aches for her family, I’m glad that we live in a world where brave people like Charlotte and her family stand up and change the world for the better.